Endeavour to Freefall
Archive/RSS/Ask
Lucy, 17, SW England.
Second account to follow people with CFS/ME.
main blog (palerthanpaper)
say hi/ask a q
This is a really good way of explaining to people what it feels like to live with a chronic illness. Everyone read, it can only help :)
Dear Immune System,
26. When someone is diagnosed I’d like to tell them:
I’m too much of a pessimist to advise anyone on how to cope with such a thing as chronic illness. I would, however, tell them where I went wrong and suggest they don’t do the same. I’d give them info about help for CFS and help for psychological health (anxiety/depression etc. caused by having CFS), but nothing about how to cope with or manage the symptoms as I currently can’t even manage myself.
Worst.Y.E.
This is accurate, apart from the friends thing, didn’t have any anyway.
True story.
(Source: this--too--shall--pass)
![sepiashowers:
chronicillnesscat:
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “So tired of chronic illness symptoms, almost rejoice over catching normal illness”]
Happened to me over a case of strep throat. I didn’t want to be sick, but it was almost sort of nice to be sick with something else.
This! it sounds so crazy but last time i had the cold it was so nice to feel ill and know that why i felt ill was down to having the cold. It was like i didn’t have the extra worry of what each weird new symptom was.
So true. For the reasons above but also because it reminds me of feeling well and normal, because even though I feel extra shit, it feels like I have something common that will just go away. Almost as though I can pretend that I’m well again but just temporarily unwell, so when it goes I’ll feel norma normal. Ah, denial.](http://25.media.tumblr.com/tumblr_luq38xupKd1qi36g3o1_400.jpg)
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “So tired of chronic illness symptoms, almost rejoice over catching normal illness”]
Happened to me over a case of strep throat. I didn’t want to be sick, but it was almost sort of nice to be sick with something else.
This! it sounds so crazy but last time i had the cold it was so nice to feel ill and know that why i felt ill was down to having the cold. It was like i didn’t have the extra worry of what each weird new symptom was.
So true. For the reasons above but also because it reminds me of feeling well and normal, because even though I feel extra shit, it feels like I have something common that will just go away. Almost as though I can pretend that I’m well again but just temporarily unwell, so when it goes I’ll feel norma normal. Ah, denial.
25. My favourite motto, scripture, quote that gets me through tough times is:
This post.
24. But I love it when people:
I don’t really know. I’d say when people understand but people can be understanding one day then completely contradict themselves the next.
No problem :-) thanks, and you x
23. Want to know a secret:
I’ve never accepted I have CFS. I’m always subconsciously searching for some other rare or difficultly diagnosed illness that can be treated or the pathophysiology known. I can’t stand not knowing the underlying cause. I can’t deal with having something that may never, you know, fuck off. I want somebody to tell me when I’ll feel better, even if it’s years from now, even if it’s never. I’m not a fan of uncertainty.
I genuinely don’t have any friends. I just wish I knew somebody in person with CFS/ME or other chronic illnesses, and in a perfect world, somebody with a compatible personality.
I feel like nobody will ever want me as a friend, let alone a girlfriend. Healthy people don’t generally feel good about themselves when they’ve got a sickness bug or the flu, so how are people with CFS etc. supposed to when we feel shit all the time? That’s a generalisation, ofc not every single person with a chronic illness will have low self confidence.
Yep.
